Educational Resources

Hearing Loss

Family Information

NAPNAP Hearing Loss Resources for Parents

Hearing Tests – https://kidshealth.org/NAPNAP/en/parents/hear.html
Hearing Loss Factsheet – https://kidshealth.org/NAPNAP/en/parents/hearing-factsheet.html
Delayed Speech or Language Development – https://kidshealth.org/NAPNAP/en/parents/not-talk.html?WT.ac=p-ra
Cochlear Implants – https://kidshealth.org/NAPNAP/en/parents/cochlear.html?WT.ac=p-ra

NAPNAP Hearing Loss Resources for Kids

Can Loud Music Hurt My Ears? — https://kidshealth.org/NAPNAP/en/kids/rock-music.html?WT.ac=p-ra
Going to the Audiologist — https://kidshealth.org/NAPNAP/en/kids/hearing-test.html?WT.ac=p-ra
Going to a Speech Therapist — https://kidshealth.org/NAPNAP/en/parents/not-talk.html?WT.ac=p-ra
What’s Hearing Loss — https://kidshealth.org/NAPNAP/en/kids/hearing-impairment.html?WT.ac=p-ra

NAPNAP Hearing Loss Resources for Teens

Hearing Aids — https://kidshealth.org/NAPNAP/en/teens/hearing-aids.html?WT.ac=p-ra
How Can I Prevent Hearing Loss? — https://kidshealth.org/NAPNAP/en/teens/hearing-impairment.html?WT.ac=p-ra
Hearing Loss in Children — https://www.cdc.gov/ncbddd/hearingloss/index.html
What Are Cochlear Implants — https://www.nidcd.nih.gov/health/cochlear-implants
https://handsandvoices.org/

Education

Individual Education Programs (IEPs) — https://kidshealth.org/NAPNAP/en/parents/iep.html?WT.ac=p-ra

Guidelines/Practice Parameters

WHO Childhood Hearing Loss – Strategies for Prevention and Care — https://www.who.int/docs/default-source/imported2/childhood-hearing-loss–strategies-for-prevention-and-care.pdf?sfvrsn=cbbbb3cc_0

Research

Cochlear Implants for Children With Severe-to-Profound Hearing Loss — https://www.nejm.org/doi/10.1056/NEJMct0706268?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub++0pubmed

Obstructive Sleep Apnea

Technique/Surgery

Outcomes of Tongue Base Reduction and Lingual Tonsillectomy for Residual Pediatric Obstructive Sleep Apnea after Adenotonsillectomy
Surgery for Obstructive Sleep Apnea in Obese Children: Literature Review and Meta-analysis
Lingual Tonsillectomy for Pediatric Persistent Obstructive Sleep Apnea: A Systematic Review and Meta-analysis
The Safety and Efficacy of Pediatric Lingual Tonsillectomy
Treatment Outcomes of Supraglottoplasty for Pediatric Obstructive Sleep Apnea: A Meta-Analysis
Modified expansion sphincter pharyngoplasty for treatment of children with obstructive sleep apnea
Partial Tonsillectomy – Video
Total Tonsillectomy – Video
Adenoidectomy with Suction Electrocautery Technique – Video
Adenoidectomy with Radiofrequency Ablation (Coblator) Technique – Video
Microdebrider Assisted Lingual Tonsillectomy – Video

Family Information

Research

Communication

Training, knowledge, attitudes and practices of Canadian health care providers regarding sleep and sleep disorders in children.
Managing Pediatric OSA Like A Boss — Podcast
OSA in Children With Down Syndrome — Podcast
Pediatric Obstructive Sleep Apnea: Beyond T&A — Podcast

Guidelines

Positive airway pressure adherence in pediatric obstructive sleep apnea: A systematic scoping review

Education

Pediatric Tracheostomy

Technique/Surgery

Tracheostomy in Infants and Children — http://rc.rcjournal.com/content/62/6/799/tab-pdf
“Tracheostomy Primer” OPENPediatrics (YouTube video) — https://www.youtube.com/watch?v=0qq-y0t4qj4&t=166s
How To Do an Infant Tracheostomy — https://www.csurgeries.com/video/perform-tracheostomy-infant/
How To Do Pediatric Trach With Maturation Sutures — Pediatric Tracheostomy with Maturation Sutures – CSurgeries
Peer Reviewed Video of Pediatric Tracheostomy — https://www.csurgeries.com/video/pediatric-tracheostomy/

Family Information

American thoracic society – Use of a Tracheostomy with a Child — https://www.thoracic.org/patients/patient-resources/resources/tracheostomy-in-child.pdf
Sick Kids resources (available in English and French) Tracheotomy and tracheostomy tube: How they help your child — https://www.aboutkidshealth.ca/Article?contentid=3264&language=English
Tracheostomy: How to change your child’s tracheostomy tube — https://www.aboutkidshealth.ca/Article?contentid=2467&language=English
Cleaning Common tracheostomy equipment — https://www.aboutkidshealth.ca/Article?contentid=2918&language=English&hub=trachvent
Tracheostomy: How to Prepare for safe travel — https://www.aboutkidshealth.ca/Article?contentid=2468&language=English
Tracheostomy: How to Prepare for Your Child’s Stoma — https://www.aboutkidshealth.ca/Article?contentid=2466&language=English
Tracheostomy: What To Do in an Emergency — https://www.aboutkidshealth.ca/Article?contentid=2470&language=English
Tracheostomy: How To Suction Your Child’s Tracheostomy Tube — https://www.aboutkidshealth.ca/Article?contentid=2469&language=English
Global Trach Collaborative (https://www.globaltrach.org/)

Family-Reflections.com – Helps families make informed decisions for their child and for their families by hearing the experiences of others who chose for and against trachs and vents. (Created with funding by the National Palliative Care Research Center)
How To Do a Trach Change — How to Do a Routine Trach Change | Cincinnati Children’s
Podcast Pediatric Tracheostomy — Pediatric Tracheostomy: The Long Game | BackTable ENT Podcast
Texas Children’s Hospital Resource Page

Apps:

Passe Muir Trach Tools ‎— TRACHTOOLS on the App Store (apple.com)
National Tracheostomy Safety Project (UK) — NTSP on the App Store (apple.com)
NTSP is provided free of charge by the National Tracheostomy Safety Project (UK). The App provides the most up to date guidance for dealing with tracheostomy or laryngectomy emergencies. The information is applicable to medical, nursing and allied health care providers and relevant to hospital or community settings.

Education

HP EADRImproving Tracheostomy Care in Resource-Limited Settings — https://journals.sagepub.com/doi/10.1177/0003489419882972
Tracheostomy in Infants and Children — http://rc.rcjournal.com/content/62/6/799/tab-pdf
Standardization of pediatric tracheostomy care with “Go-bags” — https://www.sciencedirect.com/science/article/abs/pii/S0165587619301430?via%3Dihub
Tracheostomy Troubleshooting” OPENPediatrics (YouTube video) — https://www.youtube.com/watch?v=SMC37koWV3w&t=327s
Tracheostomy: What It Is and When It Is Needed — https://www.nationwidechildrens.org/family-resources-education/health-wellness-and-safety-resources/helping-hands/tracheostomy-what-it-is-and-when-it-is-needed
Decannulation Following Tracheostomy in Children: A Systematic Review of Decannulation Protocols
International Pediatric Otolaryngology Group (IPOG) management recommendations: Pediatric Tracheostomy Decannulation
Preoperative Augmentative and Alternative Commumication Enhancement in Pedaitric Tracheostomy
Tracheostomy care: Clinical Practice Patterns of Pediatric Otolaryngologists Head and Neck Surgeons in a Publicly Funded (Canadian) Health Care System
Two-year mortality, complications, and healthcare use in children with Medicaid following tracheostomy

Research

Communication

Guidelines/Practice Parameters

AAO – Clinical Consensus Statement: Tracheostomy Care — https://journals.sagepub.com/doi/full/10.1177/0194599812460376
Care of the Child with a Chronic Tracheostomy – This Official Statement of the American Thoracic Society Was Adopted by the ATS Board of Directors, July 1999 — https://www.atsjournals.org/doi/full/10.1164/ajrccm.161.1.ats1-00
International Pediatric Otolaryngology Group (IPOG) survey: Efforts to avoid complications in home tracheostomy care

Additional Resources

Other Societies

Speech Pathology Education Guides

https://www.speechpathologydegrees.com/

The Society for Ear Nose and Throat Advancement in Children